Worldwide Thalidomide Research
The Trust has compiled a bibliography of research that has been conducted by others in the UK and across the world, which is known to them. This is intended to provide reference material to anyone requiring further information on thalidomide and it's effects.
We do not claim that this list is exhaustive and therefore we may add more listings as we become aware of them.
You can also read research that has been commissioned by the Thalidomide Trust here.
Thalidomide Defects
- R.W. Smithells, C.G. Newman
Recognition of thalidomide defects
J Med Genet, 29 (1992), pp. 716-723 - W. McBride
Thalidomide and congenital malformations
Lancet, 1 (1961), p. 358 - W. Lenz
Thalidomide and congenital abnormalities
Lancet, 1 (1962), pp. 271-272
View Record in Scopus - T. Tajima, T. Wada, A. Yoshizawa, et al.
Internal anomalies in thalidomide embryopathy: results of imaging screening by CT and MRI
Clin Radiol, 71 (2016) (2016)
1199.e1e1199.e7 - Sahar Mansour, Emma Baple, Christine M Hall
A clinical review and introduction of the diagnostic algorithm for thalidomide embryopathy
Journal of Hand Surgery (European Volume) 2019, Vol 44 - J. M. Weinrich MD, R. Beyer MD, L. Well MD, E. Tahir MD, M. Lindemann MD, U Wilke, G Adam MD, P. Bannas MD, G.K. Lund MD
Assessment of Congenital Vascular and Organ Anomalies in Subjects With Thalidomide Embryopathy Using Non-Contrast Magnetic Resonance Angiography
Vascular Biology and Vascular Medicine - Magdalena Markiewicz, Paul Stirling, Susan Brennan, Geoffrey Hooper, and Wee Lam
Age-related changes in patients with upper limb thalidomide embryopathy in the United Kingdom
National Library of Medicine
Medical Health
- K. Stromland, M.T. Miller
Thalidomide embryopathy: revisited 27 years later
Acta Ophthalmol, 71 (2) (1993), pp. 238-245
View Record in Scopus - A. O'Carroll, F. O'Reilly, D.L. Whitford
What has happened to people affected by thalidomide 50 years on?
Ir J Med Sci, 180 (2) (2011), pp. 475-478
View Record in Scopus - A. Kruse, C. Ding-Greiner, G. Beckerr, C. Stolla, A.-M. Becker, D. Baiker
Regular Surveys on Problems, Special Needs and Care Deficiencies of Victims of Thalidomide – Synopsis of Final Report Presented to the Contergan Foundation for People with Disabilities
University of Heidelberg (2013) - K.M. Peters, C. Albus, M. Lungen, A. Niecke, H. Pfaff, C. Samel
Damage to Health, Psychosocial Disorders and Care Requirements of Thalidomide Victims in North Rhine Westphalia from a Long Term Perspective
Federal Health Centre North Rhine Westphalia, Cologne (2015) - R.J. Newman
Shoulder joint replacement for osteoarthrosis in association with thalidomide-induced phocomelia
Clin Rehabil, 13 (3) (1999), pp. 250-252
View Record in Scopus - S.A. Ghassemi Jahani, B. Danielsson, J. Karlsson, A.J. Danielsson
Long term follow-up of thalidomide embryopathy: malformations and development of osteoarthritis in the lower extremities and evaluation of upper extremity function
J Child Orthop, 2014 (8) (2014), pp. 423-433
View Record in Scopus - S.A. Ghassemi Jahani, A. Danielsson, R. Ab-Fawaz, H. Hebelka, B. Danielson, H. Brisby
Degenerative changes in the cervical spine are more common in middle-aged individuals with thalidomide embryopathy than in healthy controls
PLoS One, 11 (5) (2016), Article e0155493
CrossRef - S.K. Jankelowitz, J.M. Spies, D. Burke
Late-onset neurological symptoms in thalidomide-exposed subjects: a study of an Australasian cohort
Eur J Neurol, 20 (3) (2013), pp. 509-514
View Record in Scopus - A. Nicotra, C. Newman, M. Johnson, et al.
Peripheral nerve dysfunction in middle-aged subjects born with thalidomide embryopathy
PLoS One, 11 (4) (2016), Article e0152902
CrossRef - Y. Oshima, I. Okutsu, I. Hamanaka, T. Motomura
Carpal tunnel syndrome accompanying radial dysplasia due to thalidomide embryopathy
J Hand Surg, 31 (3) (2006), pp. 342-344
View Record in Scopus - A. Ekfeldt, G.E. Carlsson
Dental status and oral function in an adult group of subjects with thalidomide embryopathy - a clinical and questionnaire study
Acta Odontol Scand, 66 (5) (2008), pp. 300-306
View Record in Scopus - L. Sjogreen, S. Kiliaridis
Facial palsy in individuals with thalidomide embryopathy: frequency and characteristics
J Laryngol Otol, 126 (9) (2012), pp. 902-906
View Record in Scopus - T. Shiga, T. Shimbo, A. Yoshizwa
Multicentre investigation of lifestyle-related diseases and visceral disorders in thalidomide embryopathy at around 50 years of age
Birth Defects Res (Part A), 103 (2015), pp. 787-793
2015
View Record in Scopus
Mental Health
- K. Imai, I. Toshiharu, M. Yamamoto, K. Komatsu, Y. Nukui, A. Yoshizawa
Psychological and mental health problems in patients with thalidomide embryopathy in Japan
Psychiatry Clin Neurosci, 68 (6) (2014), pp. 479-486
View Record in Scopus - A. Niecke, K. Peters, C. Samel, et al.
Mental disorders in people affected by thalidomide—a cross-sectional study of prevalence and psychosocial needs
Dtsch Arztebl Int, 114 (2017), pp. 168-174
View Record in Scopus
Quality Of Life
- C. Kennelly, M. Kelson, J. Riesel
Thalidomide-impaired People: Quality of Life
The College of Health/Thalidomide Society (2002) - R. Kayamori
Post-thalidomide syndrome 50 Years on
Jpn J Rehabilit Med, 2013 (50) (2013), pp. 957-996
View Record in Scopus - I. Nippert, B. Edler, C. Schmidt-Herterich
40 Years later: the health related quality of life of women affected by thalidomide
Community Genet, 5 (2002), pp. 209-216
View Record in Scopus - N. Bent, A. Tennant, V. Neumann, M.A. Chamberlain
Living with thalidomide: health status and quality of life at 40 years
Prosthet Orthot Int, 31 (2) (2007), pp. 147-156
View Record in Scopus - Vermette and Benegabi
Study on the Current Living Conditions of Canadian Thalidomide Survivors and Projections for the Future
Thalidomide Victims Association of Canada (2013) - E.M. Meyers, J.W. Jutai
The disability experience: living with a birth defect resulting from thalidomide exposure
Interdiscip J Health Sci, 2 (2) (2011) - D. Morrison
Poor balance, bilateral upper limb phocomelia, no previous exercise: a challenging combination for fall prevention in a middle-aged thalidomide survivor
BMJ Case Rep 2020;13
Other International Research
The Dysnet website contains a wealth of published and unpublished documents including research reports. Dysnet Website