Worldwide Thalidomide Research

The Trust has compiled a bibliography of research that has been conducted by others in the UK and across the world, which is known to them. This is intended to provide reference material to anyone requiring further information on thalidomide and it's effects.

We do not claim that this list is exhaustive and therefore we may add more listings as we become aware of them.

You can also read research that has been commissioned by the Thalidomide Trust here.

Thalidomide Defects

  1. R.W. Smithells, C.G. Newman
    Recognition of thalidomide defects
    J Med Genet, 29 (1992), pp. 716-723
  2. W. McBride
    Thalidomide and congenital malformations
    Lancet, 1 (1961), p. 358
  3. W. Lenz
    Thalidomide and congenital abnormalities
    Lancet, 1 (1962), pp. 271-272
    View Record in Scopus
  4. T. Tajima, T. Wada, A. Yoshizawa, et al.
    Internal anomalies in thalidomide embryopathy: results of imaging screening by CT and MRI
    Clin Radiol, 71 (2016) (2016)
  5. Sahar Mansour, Emma Baple, Christine M Hall
    A clinical review and introduction of the diagnostic algorithm for thalidomide embryopathy
    Journal of Hand Surgery (European Volume) 2019, Vol 44
  6. J. M. Weinrich MD, R. Beyer MD, L. Well MD, E. Tahir MD, M. Lindemann MD, U Wilke, G Adam MD, P. Bannas MD, G.K. Lund MD
    Assessment of Congenital Vascular and Organ Anomalies in Subjects With Thalidomide Embryopathy Using Non-Contrast Magnetic Resonance Angiography
    Vascular Biology and Vascular Medicine

Medical Health

  1. K. Stromland, M.T. Miller
    Thalidomide embryopathy: revisited 27 years later
    Acta Ophthalmol, 71 (2) (1993), pp. 238-245
    View Record in Scopus
  2. A. O'Carroll, F. O'Reilly, D.L. Whitford
    What has happened to people affected by thalidomide 50 years on?
    Ir J Med Sci, 180 (2) (2011), pp. 475-478
    View Record in Scopus
  3. A. Kruse, C. Ding-Greiner, G. Beckerr, C. Stolla, A.-M. Becker, D. Baiker
    Regular Surveys on Problems, Special Needs and Care Deficiencies of Victims of Thalidomide – Synopsis of Final Report Presented to the Contergan Foundation for People with Disabilities
    University of Heidelberg (2013)
  4. K.M. Peters, C. Albus, M. Lungen, A. Niecke, H. Pfaff, C. Samel
    Damage to Health, Psychosocial Disorders and Care Requirements of Thalidomide Victims in North Rhine Westphalia from a Long Term Perspective
    Federal Health Centre North Rhine Westphalia, Cologne (2015)
  5. R.J. Newman
    Shoulder joint replacement for osteoarthrosis in association with thalidomide-induced phocomelia
    Clin Rehabil, 13 (3) (1999), pp. 250-252
    View Record in Scopus
  6. S.A. Ghassemi Jahani, B. Danielsson, J. Karlsson, A.J. Danielsson
    Long term follow-up of thalidomide embryopathy: malformations and development of osteoarthritis in the lower extremities and evaluation of upper extremity function
    J Child Orthop, 2014 (8) (2014), pp. 423-433
    View Record in Scopus
  7. S.A. Ghassemi Jahani, A. Danielsson, R. Ab-Fawaz, H. Hebelka, B. Danielson, H. Brisby
    Degenerative changes in the cervical spine are more common in middle-aged individuals with thalidomide embryopathy than in healthy controls
    PLoS One, 11 (5) (2016), Article e0155493
  8. S.K. Jankelowitz, J.M. Spies, D. Burke
    Late-onset neurological symptoms in thalidomide-exposed subjects: a study of an Australasian cohort
    Eur J Neurol, 20 (3) (2013), pp. 509-514
    View Record in Scopus
  9. A. Nicotra, C. Newman, M. Johnson, et al.
    Peripheral nerve dysfunction in middle-aged subjects born with thalidomide embryopathy
    PLoS One, 11 (4) (2016), Article e0152902
  10. Y. Oshima, I. Okutsu, I. Hamanaka, T. Motomura
    Carpal tunnel syndrome accompanying radial dysplasia due to thalidomide embryopathy
    J Hand Surg, 31 (3) (2006), pp. 342-344
    View Record in Scopus
  11. A. Ekfeldt, G.E. Carlsson
    Dental status and oral function in an adult group of subjects with thalidomide embryopathy - a clinical and questionnaire study
    Acta Odontol Scand, 66 (5) (2008), pp. 300-306
    View Record in Scopus
  12. L. Sjogreen, S. Kiliaridis
    Facial palsy in individuals with thalidomide embryopathy: frequency and characteristics
    J Laryngol Otol, 126 (9) (2012), pp. 902-906
    View Record in Scopus
  13. T. Shiga, T. Shimbo, A. Yoshizwa
    Multicentre investigation of lifestyle-related diseases and visceral disorders in thalidomide embryopathy at around 50 years of age
    Birth Defects Res (Part A), 103 (2015), pp. 787-793
    View Record in Scopus

Mental Health

  1. K. Imai, I. Toshiharu, M. Yamamoto, K. Komatsu, Y. Nukui, A. Yoshizawa
    Psychological and mental health problems in patients with thalidomide embryopathy in Japan
    Psychiatry Clin Neurosci, 68 (6) (2014), pp. 479-486
    View Record in Scopus
  2. A. Niecke, K. Peters, C. Samel, et al.
    Mental disorders in people affected by thalidomide—a cross-sectional study of prevalence and psychosocial needs
    Dtsch Arztebl Int, 114 (2017), pp. 168-174
    View Record in Scopus

Quality Of Life

  1. C. Kennelly, M. Kelson, J. Riesel
    Thalidomide-impaired People: Quality of Life
    The College of Health/Thalidomide Society (2002)
  2. R. Kayamori
    Post-thalidomide syndrome 50 Years on
    Jpn J Rehabilit Med, 2013 (50) (2013), pp. 957-996
    View Record in Scopus
  3. I. Nippert, B. Edler, C. Schmidt-Herterich
    40 Years later: the health related quality of life of women affected by thalidomide
    Community Genet, 5 (2002), pp. 209-216
    View Record in Scopus
  4. N. Bent, A. Tennant, V. Neumann, M.A. Chamberlain
    Living with thalidomide: health status and quality of life at 40 years
    Prosthet Orthot Int, 31 (2) (2007), pp. 147-156
    View Record in Scopus
  5. Vermette and Benegabi
    Study on the Current Living Conditions of Canadian Thalidomide Survivors and Projections for the Future
    Thalidomide Victims Association of Canada (2013)
  6. E.M. Meyers, J.W. Jutai
    The disability experience: living with a birth defect resulting from thalidomide exposure
    Interdiscip J Health Sci, 2 (2) (2011)
  7. D. Morrison
    Poor balance, bilateral upper limb phocomelia, no previous exercise: a challenging combination for fall prevention in a middle-aged thalidomide survivor
    BMJ Case Rep 2020;13

Other International Research

The Dysnet website contains a wealth of published and unpublished documents including research reports. Dysnet Website