The National Advisory Council (NAC)

We are the National Advisory Council (NAC) of the Thalidomide Trust.

We are a user-led group that exists to represent the beneficiaries of the Thalidomide Trust by working in partnership with the trustees and the staff.

There are 12 members of the NAC. We are all beneficiaries of the Trust and are elected by the beneficiary community to represent their views.

Scroll over the photos to find out more about each member.

Each NAC member is elected for a four-year term. Each member can serve a maximum of three terms, after which they need to step back for at least a year before being able to stand again.

As NAC members, we sit on committees with staff and trustees and hold other roles.

If you'd like to get in touch with anyone on the NAC, please use the Contact buttons underneath each member's photo .

NAC Members

Thalidomide Trust NAC member Geoff Adams-Spink
Geoff Adams-Spink
Geoff lives in London. He is on the Finance committee and the Joint Event planning team with the Thalidomide Society. He is interested in how technology can be used to improve the lives of disabled people. Last elected: 2020 (second term).
Contact Geoff Adams-Spink

    Mikey Argy
    Mikey Argy
    Mikey lives in East Sussex and is on the Campaigns team. Last elected: 2021 (first term, but has served previously).
    Contact Mikey Argy

      Thalidomide Trust NAC member Rowland Bareham
      Rowland Bareham
      Rowland lives in Suffolk and he is chair of the NAC. He is on the Finance committee and the Research committee. He is a Trust Volunteer and is on the Campaigns team. Last elected: 2018 (second term).
      Contact Rowland Bareham - NAC Chair

        Thalidomide Trust NAC member Maggie Boyd
        Maggie Boyd
        Maggie lives in Knaresborough and is on the Health & Wellbeing committee. She is also a volunteer for the Lift-Up service. Last elected: 2018 (first term).
        Contact Maggie Boyd

          Thalidomide Trust NAC member Carolyn Desforges
          Carolyn Desforges
          Carolyn lives in Nottinghamshire. She is co-chair of the Health & Wellbeing committee and sits on the Research committee. She is also a Trust Volunteer and hosts a Positively Connected coffee break on Meetup. Last elected: 2019 (second term).
          Contact Carolyn Desforges

            Thalidomide Trust NAC member Nick Dobrik
            Nick Dobrik
            Nick lives in London. He is a member of the Finance committee and the Campaigns team. Last elected: 2018 (second term, but has served previously).
            Contact Nick Dobrik

              Thalidomide Trust NAC member Sue Gooding
              Sue Gooding
              Sue lives in the south of England. She is on the Health & Wellbeing committee. She also hosts the Weight Loss group and is a volunteer for the Trust. Sue also hosts Positively Connected coffee breaks on Meetup as and when needed. Last elected: 2021 (first term).
              Contact Sue Gooding

                Thalidomide Trust NAC member Graham Kelly
                Graham Kelly
                Graham lives in Ealing. He is a member of the Research committee and the Health & Wellbeing committee. He is also on the Future Care Costs working group and involved with the feedback surveys. Last elected: 2021 (second term).
                Contact Graham Kelly

                  Thalidomide Trust NAC member Craig Millward
                  Craig Millward
                  Craig lives in South Yorkshire. He is Vice Chair of the NAC, on Campaigns team and on the Finance committee. He is a National Trust volunteer in his spare time. Last elected: 2019 (third term).
                  Contact Craig Millward

                    Thalidomide Trust NAC member Helen Shore
                    Helen Shore
                    Helen lives in Plymouth and is on the Health & Wellbeing committee. She is involved in the Lift-Up Service and hosts a Positively Connected coffee break on Meetup. She is also part of the Loughborough Study into Physical Activity. Last elected: 2020 (first term).
                    Contact Helen Shore

                      Thalidomide Trust NAC member Guy Tweedy
                      Guy Tweedy
                      Guy lives in Harrogate. He is on the Finance committee and the Campaigns team. He has been involved with campaigns to help beneficiaries for the past two decades. Last elected: 2021 (third term, but has served previously).
                      Contact Guy Tweedy

                        Thalidomide Trust NAC member Philip Williams
                        Philip Williams
                        Phil lives in the Devon/Dorset border and is the chair of the Finance committee. He is involved with other finance-related working groups and events for the Trust as well as being a Patient Advisor at Exeter University. Last elected: 2020 (second term).
                        Contact Philip Williams

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