The National Advisory Council (NAC)

The Thalidomide Trust has a National Advisory Council (NAC) who advise trustees on matters relating to beneficiaries.

There are currently 12 members of the NAC, who are all beneficiaries of the trust and who are elected by the entire beneficiary community to represent their views.

Scroll over the photos to find out more about each member.

If you'd like to get in touch with anyone, please use the Contact buttons underneath each members' image.

NAC Members

Thalidomide Trust NAC member Geoff Adams-Spink
Geoff Adams-Spink  Geoff lives in London and is on the Health & Wellbeing committee and the Joint Event planning team with the Thalidomide Society. His interests are in technology and how it can be used to improve the lives of disabled people.
Play video to learn more about Geoff and his role
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Contact Geoff Adams-Spink

    Thalidomide Trust NAC member Rowland Bareham
    Rowland Bareham Caretake NAC Chair  Rowland lives in London and is chair of the Finance committee. He is also on the Research committee and involved in the Diageo Contingency Plan project.
    Play video to learn more about Rowland and his role
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    Contact Rowland Bareham - Caretake NAC Chair

      Thalidomide Trust NAC member Maggie Boyd
      Maggie Boyd
      Maggie lives in Knaresborough and is on the Health & Wellbeing committee. She is also in the Operating Guidelines Working Group and is a volunteer for the LIfTS project.
      Play video to learn more about Maggie and her role
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      Contact Maggie Boyd

        Thalidomide Trust NAC member Carolyn Desforges
        Carolyn Desforges Co-chair of H&W Committee Carolyn lives in Nottinghamshire and is involved with a wide range of projects including improving communication and increasing the diversity of the NAC. She is also a Connect Volunteer.
        Play video to learn more about Carolyn and her role
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        Contact Carolyn Desforges

          Thalidomide Trust NAC member Nick Dobrik
          Nick Dobrik
          Nick lives in London and he is a member of the Campaigns Team.
          Play video to learn more about Nick and his role
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          Contact Nick Dobrik

            Thalidomide Trust NAC member Simone Illger
            Simone Illger
            Simone lives in Reading and is a member of the Health & Wellbeing committee. She is part of the Website Working group and Wellbeing 2020 group, and is involved with the NAC newsletter and Fit For The Future events.
            Play video to learn more about Simone and her role
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            Contact Simone Illger

              Thalidomide Trust NAC member Graham Kelly
              Graham Kelly
              Graham lives in Ealing and is a member of the Research committee and Future Care Costs working group. He is also involved with the Feedback Surveys and Campaigns Team.
              Play video to learn more about Graham and his role
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              Contact Graham Kelly

                Thalidomide Trust NAC member Craig Millward
                Craig Millward
                Craig lives in South Yorkshire and is on Campaigns Team and the Finance committee. He is also a National Trust volunteer in his spare time.
                Play video to learn more about Craig and his role
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                Contact Craig Millward

                  Thalidomide Trust NAC member Helen Shore
                  Helen Shore
                  Helen lives in Plymouth and is very passionate about the Health and Wellbeing of Thalidomiders. She is involved in the LIFT UP Service and is a host of one the lockdown coffee afternoons. She is also part of the Loughborough Study into Physical Activity and is a Patient Liaison with Exeter University Blood Pressure Study.
                  Contact Helen Shore

                    Gary Skyner NAC
                    Gary Skyner
                    Contact Gary Skyner

                      Thalidomide Trust NAC member Guy Tweedy
                      Guy Tweedy
                      Guy lives in Harrogate and is on the Finance committee. He has also been involved with campaigns to help beneficiaries for the past two decades.
                      Play video to learn more about Guy and his role
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                      Contact Guy Tweedy

                        Thalidomide Trust NAC member Philip Williams
                        Philip Williams
                        Philip lives in the Devon/Dorset border and is on the Finance committee. He is involved with other finance related working groups and events for the Trust as well as being a Patient Advisor at Exeter University.
                        Play video to learn more about Philip and his role
                        Play Video
                        Contact Philip Williams

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