We are the National Advisory Council (NAC) of the Thalidomide Trust.
We are a user-led group that exists to represent the beneficiaries of the Thalidomide Trust by working in partnership with the trustees and the staff.
There are 10 members of the NAC at the moment but there is usually 12. We are all beneficiaries of the Trust and are elected by the beneficiary community to represent their views.
Scroll over the photos to find out more about each member.
Each NAC member is elected for a four-year term. Each member can serve a maximum of three terms, after which they need to step back for at least a year before being able to stand again.
Geoff SpinkGeoff is the Chair of the NAC and lives in London. He is on the Finance committee and the Joint Event planning team with the Thalidomide Society. He is interested in how technology can be used to improve the lives of disabled people. Last elected: 2020 (second term).Play video to learn more about Geoff and his role
Mikey ArgyMikey is the Vice Chair of the NAC and is on the Campaigns Team. She lives in Sussex. Last elected: 2021 (first term, but has served previously).Play video to learn more about Mikey and her role
David AlexanderDavid lives in Alloa, and is currently the sole NAC member living in Scotland. This is his first year on the NAC and has also joined the Finance Committee. David has a part time job working as part of the Admin team for a company of Law Accountants in Stirling. Play video to learn more about David and his role
Rowland BarehamRowland lives in Suffolk. He is on the Finance committee and the Research committee. He is a Trust Volunteer and is on the Campaigns team. Last elected: 2018 (second term).Play video to learn more about Rowland and his role
Carolyn DesforgesCarolyn lives in Nottinghamshire. She is co-chair of the Health & Wellbeing committee and sits on the Research committee. She is also a Trust Volunteer and hosts a Positively Connected coffee break on Meetup. Last elected: 2019 (second term).Play video to learn more about Carolyn and her role
Nick DobrikNick lives in London. He is a member of the Finance committee and the Campaigns team. Last elected: 2018 (second term, but has served previously).Play video to learn more about Nick and his role
Graham KellyGraham lives in Ealing. He is a member of the Research committee and the Health & Wellbeing committee. He is also on the Future Care Costs working group and involved with the feedback surveys. Last elected: 2021 (second term).Play video to learn more about Graham and his role
Craig MillwardCraig lives in South Yorkshire. He on Campaigns Team and on the Finance committee. He is a National Trust volunteer in his spare time. Last elected: 2019 (third term).Play video to learn more about Craig and his role
Helen ShoreHelen lives in Plymouth and is on the Health & Wellbeing committee. She is involved in the Lift-Up Service and hosts a Positively Connected coffee break on Meetup. She is also part of the Loughborough Study into Physical Activity. Last elected: 2020 (first term).Play video to learn more about Helen and her role
Guy TweedyGuy lives in Harrogate. He is on the Finance committee and the Campaigns team. He has been involved with campaigns to help beneficiaries for the past two decades. Last elected: 2021 (third term, but has served previously).Play video to learn more about Guy and his role
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