The National Advisory Council (NAC)

We are the National Advisory Council (NAC) of the Thalidomide Trust.

We are a user-led group that exists to represent the beneficiaries of the Thalidomide Trust by working in partnership with the trustees and the staff.

There are 10 members of the NAC at the moment but there is usually 12. We are all beneficiaries of the Trust and are elected by the beneficiary community to represent their views.

Scroll over the photos to find out more about each member.

Each NAC member is elected for a four-year term. Each member can serve a maximum of three terms, after which they need to step back for at least a year before being able to stand again.

As NAC members, we sit on committees with staff and trustees and hold other roles. Find out who does what on the NAC.

If you'd like to get in touch with anyone on the NAC, please use the Contact buttons underneath each member's photo.

If you have a general query, please use the button here.

Contact the NAC

NAC Members

Thalidomide Trust NAC member Rowland Bareham
Rowland Bareham
Rowland lives in Suffolk and he is chair of the NAC. He is on the Finance committee and the Research committee. He is a Trust Volunteer and is on the Campaigns team. Last elected: 2018 (second term).
Play video to learn more about Rowland and his role
Play Video
Contact Rowland Bareham - NAC Chair

    Thalidomide Trust NAC member Craig Millward
    Craig Millward
    Craig lives in South Yorkshire. He is Vice Chair of the NAC, on Campaigns team and on the Finance committee. He is a National Trust volunteer in his spare time. Last elected: 2019 (third term).
    Play video to learn more about Craig and his role
    Play Video
    Contact Craig Millward - NAC Vice Chair

      David Alexander
      David lives in Alloa, and is currently the sole NAC member living in Scotland. This is his first year on the NAC and has also joined the Finance Committee. David has a part time job working as part of the Admin team for a company of Law Accountants in Stirling.
      Contact David Alexander

        Thalidomide Trust NAC member Mikey Argy
        Mikey Argy
        Mikey lives in East Sussex and is on the Campaigns team. Last elected: 2021 (first term, but has served previously).
        Play video to learn more about Mikey and her role
        Play Video
        Contact Mikey Argy

          Thalidomide Trust NAC member Carolyn Desforges
          Carolyn Desforges
          Carolyn lives in Nottinghamshire. She is co-chair of the Health & Wellbeing committee and sits on the Research committee. She is also a Trust Volunteer and hosts a Positively Connected coffee break on Meetup. Last elected: 2019 (second term).
          Play video to learn more about Carolyn and her role
          Play Video
          Contact Carolyn Desforges

            Thalidomide Trust NAC member Nick Dobrik
            Nick Dobrik
            Nick lives in London. He is a member of the Finance committee and the Campaigns team. Last elected: 2018 (second term, but has served previously).
            Play video to learn more about Nick and his role
            Play Video
            Contact Nick Dobrik

              Thalidomide Trust NAC member Graham Kelly
              Graham Kelly
              Graham lives in Ealing. He is a member of the Research committee and the Health & Wellbeing committee. He is also on the Future Care Costs working group and involved with the feedback surveys. Last elected: 2021 (second term).
              Play video to learn more about Graham and his role
              Play Video
              Contact Graham Kelly

                Thalidomide Trust NAC member Helen Shore
                Helen Shore
                Helen lives in Plymouth and is on the Health & Wellbeing committee. She is involved in the Lift-Up Service and hosts a Positively Connected coffee break on Meetup. She is also part of the Loughborough Study into Physical Activity. Last elected: 2020 (first term).
                Play video to learn more about Helen and her role
                Play Video
                Contact Helen Shore

                  Thalidomide Trust NAC member Geoff Spink
                  Geoff Spink
                  Geoff lives in London. He is on the Finance committee and the Joint Event planning team with the Thalidomide Society. He is interested in how technology can be used to improve the lives of disabled people. Last elected: 2020 (second term).
                  Play video to learn more about Geoff and his role
                  Play Video
                  Contact Geoff Spink

                    Thalidomide Trust NAC member Guy Tweedy
                    Guy Tweedy
                    Guy lives in Harrogate. He is on the Finance committee and the Campaigns team. He has been involved with campaigns to help beneficiaries for the past two decades. Last elected: 2021 (third term, but has served previously).
                    Play video to learn more about Guy and his role
                    Play Video
                    Contact Guy Tweedy

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